Isn't that the truth? Sometimes it's happy and joyful laughter. Sometimes it's more maniacal. But at least we're laughing!
We've doing a lot of laughing since I posted last! I'll let you decide what kind of laughter it's been!
It's hard to believe it's been so long but then the past four months have gone by in a bit of a blur... And there have been many times that I thought that if I wasn't already crazy, crazy was right around the corner. Here's what we've been up to...
At the start of the school year, Avery got a new school nurse. Surprisingly, I wasn't as uptight about this as I would have guessed. Just her being older and more knowledgeable about her diabetes helped put me at ease. A little. But the unknown is always a little scary.
Her wonderful angel of a school nurse for the past few years knew she was leaving and put together a big binder of how to's and even trained the incoming nurse at the end of last school year. Then a few days before school started, that nurse quit. So here we were about three days before school started with no nurse. Cue freak out and maniacal laughter.
They hired a new nurse and I made an appointment to go in and talk to her the day before school started. The three of us walk into the clinic with all of her supplies and orders and such... and who do we see? Not just her NEW nurse but her OLD nurse! Cue the tears!
Her wonderful, incredible nurse had come all the way back to spend the first few days at school making sure that "her girls" were taken care of and that things went smoothly. Avery said, "I think she knew I was going to be a little nervous without her so she came to make sure we were all ok!" What a blessing she is!
We have also been blessed with a wonderful new nurse! She has a BIG job and she's handling it and learning about diabetes and doing a great job!
One of the other things that has been keeping us busy is cheerleading! I took on the role of the director of the basketball side of our peewee cheer program. I'm also currently coaching Avery's basketball cheer squad. That is keeping us quite busy! In the fall, Avery started practice with her competition cheer squad. She was thrilled to make the competition team after trying out in the spring.
It was definitely A LOT of trial and error. We knew that traditionally cheer and especially tumbling made her blood sugar drop like a rock. So we started out under blousing and doing minus basals. Only have her end up... high. What we didn't take into account was the nerves. Avery is a good cheerleader. She's used to being one of the girls who is able to do the routines well without much practice. She's used to having some of the highest jumps and cleanest motions. But on the competition squad... everyone else is good, too. And some of these girls were able to do more tumbling than she could. So... again, cue the tears! It was a great learning experience for her. And she totally stepped up to the challenge. She shook off those nerves and got after it. She practiced and practiced and practiced and now she's got an amazing toe touch and round off back handspring! I'm so proud of her effort and perseverance!
She really handled the diabetes aspect well. Her coaches were awesome and kept and eye on her. But she handled things on her own. She would text or call us if she was low or high or didn't feel right. To our pleasant surprise, often she would text us what she THOUGHT she needed to do and she would be right on!
The largest issue was AFTER practice. She practiced for two hours twice a week. As she got more confident in her tumbling, the more she did at practice. So TWO hours of tumbling and dancing and you can just imagine what that did to her blood sugar. Sometimes even into the next day. It was not at all uncommon for her to run low for an entire day after practice.
The kicker is... we never did figure out a fool proof method for handling it. We would think we had an plan and we would try it and it would work. And then the next time it wouldn't. Cue more maniacal laughter. Or bad words. Or both. It got to the point where J and I would be talking about what to do and we'd say, "Well, whatever we THINK we should do - let's just do the opposite."
But what are you going to do? She LOVES cheering. We would never keep her from it even though it resulted in many sleepless nights and great frustration for US. She just rolled with it. Just like she always does. The lows and highs never seemed to faze her much. She pushed through the tiredness and the headaches and just kept doing her thing. Did I mention that I was really proud of this girl??
We were a little worried about the competitions because she would be away from us and not really accessible for a period of time. We had no idea what the nerves and excitement would do to her blood sugar or how to handle her care. We did not want her to wear her Dexcom receiver while performing so what we did was have her wear through the warm ups and then give it to one of her coaches right before she was to perform. If we noticed she needed to do something - we would text her. It really worked quite well. The nerves never affected her numbers on competition days and it all went really smoothly.
Something else new for us this fall was getting RID of our Dexcom receiver when we upgraded to the G5 system. We now just use our iphones! Avery was thrilled to have one less thing to carry around with her during the day. She wears her phone in the pouch around her waist just like she always has. We love the share aspect because we can check in on her throughout the day and night. Our phones also alarm and alert us when her blood sugar is too high or too low or dropping quickly.
This is what the app looks like on her phone.
And here is an example of the ugly blood sugars we saw just so you know I'm keepin' it real and not lying!
All of the independence we have been able to give her this year at cheer practice and competitions and birthday parties and just in LIFE would not have been possible without our Dexcom keeping watch. I trust that little thing more than I've ever trusted any piece of technology before. I don't know if it would be so "easy" to let her try things on her own without knowing that Dex is keeping a watchful eye on my girl and we will be alerted if there is a problem.
It's not just nice for US, either. Her teachers and nurse love it, too! They love knowing that it is keeping track of her. AND that we are able to see and keep tabs as well! My parents have also put the app on their phones so that they can have access to her numbers when she is with them. They don't set the alerts - her phone alerting is enough for them. But it gives them piece of mind! AND - they check on her from time to time when she's not with them, too! I'll get a text - "Is everything ok?" "Her numbers have been low... cheer?" It's nice to know that someone else is checking on our girl! I've also had my best friend put the app on her phone! She loves it, too! She said she loves being able to just look at her phone to see what Avery's number is and not have to bother her by asking! She likes to check it a lot when she's watching Avery - just to be sure she's ok! I really appreciate that!
My love for the G5 is really another post entirely! But it's been a huge blessing and really helped us give her the independence that she is so craving!
JDRF has also been keeping us busy - as usual! I don't think that I mentioned that I was honored as the Volunteer of the Year for our chapter at our Gala in May. I was totally blown away and shocked to receive this honor! We had a great time at the Gala and raised a lot of money for diabetes research!
Gala selfie in the car! A is too busy reading to smile!
In all honesty, this was a tough walk year. After SEVEN years, people just aren't as willing or motivated to donate. Now, I know you may be thinking that I'm insane because we raised so much money... but last year we raised over $22,000! With all of our cheer responsibilities, I didn't have the time or energy to do as many fundraisers as I had in the past. We didn't have anyone walk with us this year. It was a cold, rainy day - and we just told the couple that were actually willing to come to stay home and keep dry! I get it... Many of our friends have kids and responsibilities that keep them very busy! It's not always possible to walk with us. And it's not always possible to raise a ton of money. But we just keep at it and we don't give up. We know that every bit helps. And we know this isn't a sprint - it's a marathon. There will be bumps in the road. We've just got to keep going.
School, as always, is keeping us busy and laughing! At least for me, the laugh has a bit of crazy in it and makes my eyes twitch! Avery is having a great year and has two incredible teachers who are teaching her so, so, so much and really bringing out her confidence and independence! I am also having a good year - although a very challenging one! I love, love, love my kiddos! I have 24 kinders in my class this year. When we have 26, we get an instructional assistant. I've had an IA for the past five years. Before that we shared other assistants. This year I'm totally on my own. In a way, I really like that! But it's been challenging because I'm used to being able to do things a certain way or do more, bigger, grander things because I have help. Sometimes I forget that and find myself swamped and overwhelmed!
Our house has been another MAJOR cause of laughter - mostly the eye twitching, crazy kind! We started a rather large renovation in September. It will finally be totally finished TOMORROW! It's involved packing up every room in our house into boxes. And unpacking them all again. And sometimes repacking and re-unpacking again! It's involved living mainly in our bedroom for a week. And being without an upstairs bath (shower) for a week. It's involved so much dust I could build a snowman. It's involved having a refrigerator in our living room. And it's involved realizing that packing up our "necessities" involves a rather large box of diabetes supplies.
We've been surprised at the change we've seen in Avery the past few months. She's wanting more independence. That's normal for any kid her age. But throwing diabetes into the mix adds another layer of concern. We've let her go unaccompanied to birthday parties and cheer parties and play dates. I can't say she always has handled diabetes "perfectly" - but she's learning and she's doing quite well! One day her nurse got on her at school for punching her carbs and insulin into her PDM and delivering so quickly that the nurse was not able to double check. I understand her concern. But we did have to realize that Avery made the correct decision. And that sometimes at home she just lets us handle it... but that doesn't mean she isn't paying attention. On her own and with other caregivers she knows her stuff. That's a proud and bittersweet moment of realization.
I miss blogging. I miss all of you. I love that I still get emails and talk to many of you on Facebook and Instagram! I hope to find the time to write more in the new year... I need it. It's good for my soul. And I'm always honored and surprised when it helps someone else, too!
So...
It's been four months filled with many, many things - but we're still laughing all the way!
And I consider THAT a successful few months!
Keep Laughing, Friends!
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